Love and sorrow

Another round of chemotherapy

It has been a long 3 years since I was first diagnosed with stage 3B ovarian cancer. I’ve riden a Rollercoaster of emotions, and those who know me well know I’m not fond of rollercoasters, but you can not run away from it. You put your safety harness on and hope for the best.

During this time, I have had lots of family members also get diagnosed with cancer. It’s a scary place to be. You begin to live with a lot of sorrow. You feel like the darkest of darkness has swept around you, and you wonder if you will survive. Those people in your life tell you to fight the good fight, to be strong, to find the light and hope, and to remind you of how much they love you. All great messages. What we also need to remember is that it’s also ok to feel angry, to feel sadness or sorrow, and to wonder if things will ever go back to the way it was. There’s no such thing as negative emotions. It’s ok to feel your feelings. They’re only there to visit. They don’t need to stay. We need balance in our lives, and these feeling often balance themselves out in the end.

I think love and sorrow travel hand in hand.  It’s what brings joy into our lives. Without sorrow, you can not see the beauty that walks and exists around you. Sometimes, I think we get caught up in the sorrow and need people to show us the way back to love and show us how to see the beauty. It’s the nature of like. I also believe that when we don’t acknowledge what causes us sorrow, that’s when we begin to live in anger. As I’ve said many times to my lo ed ones, I don’t want to live in anger. However, it is ok to feel angry. I just believe that we acknowledge it and then move forward, returning to our love state of being. I know it sounds easy, but I also know it’s hard to do. 

So, as I sit here receiving the 6th chemotherapy for my remission (I’ve had 12 total now). I think of all I’ve learned through this process. I’ve learned that while I’m the one with cancer, all my loved ones are also going through this journey. I’ve learned a lot about my body and health. I’m grateful for a bunch of blessings. The medical people in my life and the medical discoveries over the many years of research. I am grateful for healing, even if it’s slow. I’m grateful for my family and friends who bring me light and love every day. I’m grateful to the Creator who gives me strength every day to keep going. I’m grateful to those who have dropped off meals to help us out. I am for the kindness of strangers who remind me that there is still love in a world full of sorrow. Most of all, I am grateful for my life with all its sorrows and all its love.

Kinanâskomitin, I am grateful, ahkamēyimok, keep going. Kiyam, let go, miyo-pimâtisiwin, it’s a good life. Live it in a beautiful way. Ekosimaka, that’s all for now.

Legacies

I once attended a conference day, where I worked. The organizers invited a woman, a holocaust survivor, to come and speak. She spoke of the legacies we leave behind. She expressed the wish to honour the legacies her parents gave her. With this consideration, I wish to do the same. Her parents did not know what legacies they gifted her. I wish to acknowledge the gifts that I have received from my parents just as this woman had legacies from both her mother and her father

I believe the greatest legacy I have received from my mother is the gift of love. Not just regular love but deep abiding and unconditional love. She taught me no matter how someone behaves or speaks; you must always treat that person with love because you do not know the pain the individual carries with him or her. 

My mother always approaches everyone with the love of a family member. Even when someone mistreated her, was cruel or unkind, my mother still held a place of love and respect in her heart for that person. This was the way that my mother taught me to forgive. My mother has always said forgiveness is not about the person you are forgiving. It is about releasing you from the bond of that other person. She taught me that if I did not forgive whatever it was that happened to me; I would become an angry and resentful person. She told me that if I became unforgiving, then the person who harmed me would win, and I would always give up my personal freedom to that person. In essence, I would be controlled by that person and the hate and anger I may feel towards them. 

 My mother taught me quiet strength. She did this through her deep abiding faith. Whenever there was a crisis in our lives, whenever things seemed crazy and out of control, my mother would calm us down and pray. She would tell us God is always with us, even in the bad times. My mother’s absolute belief that we are not alone in this world has carried through in all that I do. I live my life in constant prayer. I talk to God at all times. Some people would think it’s crazy to pray about knowing the right thing to say or to feel a sense of peace, but this is one of the lessons my mum taught me. Pray often, and do not be afraid to talk to God.  

My mother exemplified kindness, always willing to share whatever she had, always willing to look out for her fellow human being. My mother did not shirk away from people that might make others uncomfortable. She believes in the power of respect, kindness and most of all love. My mum loves all of her nieces and nephews equally and is always so happy to see them. She loves her family in England endlessly and carries that love equally strongly for her family in Canada. To my mum, family is everything. It is family who carries you into this world when you are little. They are the ones who give you strength when you are sick. Family is who continues and remembers you after you are gone. Even when your family struggles with life problems, it is your family that you turn to for help when you are struggling along the way.  

My father has given me a different legacy than that of my mother. He has taught me the value of never giving up. He teaches me endurance through adversity, and most of all, he has taught me that you can overcome all that you struggle with. These are the lessons I choose to learn from him. These are lessons we learned from him as adults. The lessons we learned as children were different, as he was so wounded by his past. 

My father carried a lot of pain inside of himself. It caused him to fear, distrust, and carry anger for many years. Sometimes, those feelings still jump up and trigger him to act in ways he would rather not. He once told me “Carrying pain is a terrible thing.” He said “When you continue to carry it, it can eat you up inside and destroy your life.” He said, “Shame also builds within you and is what silences you.” He told me, “It is only in letting go and forgiving that you can be free.” He said, “If you continue to try to cover it up and not face your experiences, you hide from your truth. When you hide from your truth, then you don’t see how your choices are impacting others.” He taught me it is alright to say you’re sorry and to admit when something you have done has hurt those that you love the most. 

My dad also taught me bravery. He taught me this by continuing to try to quit drinking and by finally succeeding in his sobriety. He also taught this to my brother and I when he invited us to sit and bare witness his story of what happened to him at residential school. As I listened to his story and heard of his traumas and watched him get triggered by memories of things that happened, not only at the residential school but along the way in his life, I saw him in a different way. I saw the child in him that was hurt. I saw what it took for him to tell us ‘this is what happened to me’. I understood more about my father in that moment than I had ever before.

My father was also a contradiction. His life experiences caused him to repress who he was. It caused him to deny his heritage and to be angry with many things. He would not speak his first language, nor would he practice any traditions. He was not able to allow this part of himself to exist, so great was his shame of his own identity. A lot of things cause him pain even still.  It causes him hurt when people don’t believe we are his children because we don’t look the way we are supposed to, and that makes me sad. Yet he talks about us with pride and speaks of our accomplishments because they are an extension of his own. I am glad he is proud of us, of my kids, and the legacies I am trying to pass on.  In learning how to deal with all those previously repressed feelings, my dad had to relearn care, compassion, understanding, and kindness. He had to accept himself, his past, and his future. This is where my parents taught me that no matter what; the people you love, love you too. 

There is also a history I carry with me. It is the history of the Cree/ Nehiyawak people. It is the oppression and colonisation and the stories passed on in our family. I carry this legacy of hate with me. This is not by my choice; this is the legacy of racism. It is in the history of Canada. It is difficult for people to acknowledge that it exists. It is based on a fear that perhaps they have behaved in a racist manner. Racism, it is not really gone. It is subtle. It is in the way people talk about “others”.  I see it in the way people respond to different aspects of myself. I see it when people tell me “well you don’t look that Native” like that’s a good thing or “Wow your dad is really native” or “That’s your real dad?” I also see it when my people tell me “You look so Moniyawak but I knew you couldn’t be because I heard you speak” or “I knew, because you said you were from Saddle Lake.” These statements strip from me the self I believe I am and place me always into the category of other. I never truly belong to one group of the other. I feel the pain of it in my heart when I hear people speak with such disdain about things that they do not understand. 

When people speak with authority about “ancient history,” they fool themselves into believing there is not a problem that exists. There is no reconciliation in this. We live in a world that allows hate to fester and grow: where it’s okay to say, “They should just move forward because it’s better for them to let it go.” Sometimes I am told, “Jeeze, they should just get over it.”  No one would say that to a holocaust survivor or a survivor of genocide such as what happened in Rwanda or in Cambodia.  It’s just not “polite”. No one would tell the child witness of a murder, “Just get over it” or “It didn’t matter” to the child witness of assault, to children who experienced violent persecution, physical, sexual or emotional abuse and assaults. No, we say that as a society, we would empathise, provide understanding, and treat them with care and love. Yet this is not what really happens. If we are real and honest with ourselves, the reason we say, “it happened a long time ago”, “it wasn’t us who did that” or “I am not responsible for that” is because it is too painful for people to acknowledge the impact of our behaviour on others. This is the legacy I carry with me when I sit and bite my tongue because I don’t want to offend anyone with the truth I carry in me. An example is when people tell me racism doesn’t exist anymore, and I think back to my first real experience with that as a child with my father in St. Paul and being harassed by an RCMP. I think back to walking with my cousins, down the road in Saddle Lake to get candy as a way to have a break from a funeral we were at and having a vehicle drive past us and these young boys scream obscenities at us, calling us names. I think about how people have treated my family members with suspicion and scorn for no other reason than for how they look. I wonder how anyone can pretend that behaving like that is normal. It seems society believes that because “they” are different from us, it’s alright to be ambivalent to the way children were so cruelly treated. 

If I can provide my children with the legacies my parents have provided me, then that is half the battle. I try to give my children, my nieces, and nephews a new perspective. I try to help them treat those people with unconditional love, kindness, and respect. I strive to be forgiving and brave and to carry the truth with me. Yet I am only human. I make mistakes. I get angry and feel hurt. Since I am human, I can learn. I can learn and speak to the truth because it is how I gain freedom.  I am reminded once again of what that lady said to us. She said “This is not about all the terrible things that happened in my life. It is about learning to forgive and to teach people how to love one another.”  If I can leave that kind of legacy to my children and those people who cross my path in life, then I will know I have lived a good life. 

There’s a thread

There’s a thread that runs through through me that connects me to the past. It joins my ancestors to me and defines who I am. This thread of golden light hits me and twists through connection. Wrapping me in the love that they had when they prayed for the future.

There is a thread that joins me, strong as it is. This thread is through song and ceremony. It’s made of golden light and connects my ancestral past to me. The light heals, the light sends love, and the golden thread of light keeps me connected. It reminds me that my ancestors prayed for me.

Do you see beauty?

Do you see the beauty of the snow as it sparkles in the moonlight?

Do you see the beauty of the falling rain in the evening?

Do you feel the peace in the midnight fog?

When you are surrounded by beauty and peace do you know it’s there?

Meditation

I close my eyes and I feel the softness of the earth under my feet. My moccasins touching the soul of where my ancestors walked before me.

I breath in and listen to the quiet of the forest all around me. It’s quiet but noisy at the same time. I gear the birds and animals around me. I feel the peace and connection that my ancestors felt before me.

I open my eye and I see the beauty of this land. I see the clear water, I see the treas grown tall. I see the birds flying and the moose walking. I see the plants for healingand medicines and I know where I belong.

I feel the connection, so strong. I pray to my ancestors to ask Creator to help me and guide me. I pray that others see the beauty and blessing of our ancestors who walked this land. I pray so others may see their reflection and the beauty of the natural world.

Hope

Hope is powerful when you have it. So many experiences can diminish the hope that you have and it can be difficult to find it again. Being diagnosed with cancer can devastate your hope. It can be like having a candle and trying to keep it lit in a storm. You never know whats happening and you are never actually prepared for whats going to happen.

Recently I have had many people close to me diagnosed with cancer. It sometimes feels like it’s all around me and as if it’s so common. It feels like we all need hope in action. We can only do what we can to build hope in ourselves and in others.

There are so many thing to learn when you get diagnosed with cancer. It’s hard to figure it all out. There’s lots of information out there. It’s also difficult to know how accurate all that information is. Every time I hear about someone I know being diagnosed with cancer I feel my shock over again. Then I think about all the experiences they will be going through and I pray that they have a good outcome.

I walked in Ovarian Cancer Canada’s walk of hope. They say “Hope for change, hope for awareness and hope a cure.” This year will be my third year walking in it. I prefer to do a virtual, local walk instead of the large walk in Edmonton. I can walk with my friends and family. It makes me feel hopeful. The first year I walked I was still receiving chemotherapy. I could not walk very far. I set a goal for my second year, to walk at least 5 kms. I was able to do that. This year, I hope to walk at least the 5 kms again and perhaps further.

Walk of Hope 2021

I’m walking because I was diagnosed with stage 3B ovarian cancer on April 1, 2020. I was told I’m in remission on September 28th, 2020. It’s been an experience and a difficult journey. I thought that somehow being in remission would mean that I was better. That all the fears I struggled with would soon be gone. That’s not the reality. I have lingering affects from the chemo. I struggled to remove myself from the idea of having cancer.

I guess I’m kind of still living with cancer. I’m still receiving treatment because I have a BRAC1 gene mutation. This means that I’m at higher risk for recurrence or getting breast cancer. I’m currently taking a parp inhibitor, which to my understanding is a form of targeted therapy to prevent recurrence. Research shows its very effective.

Recently I started seeing information about living with and living beyond cancer. I guess living with cancer would be the diagnosis and the treatments. Living beyond cancer would be be after all your treatments are finished and seeing yourself as thriver not just a survivor. I plan to live beyond cancer.

The longest journey…

The longest journey I took was the one to find hope. The longest journey is the one that I take as I try to remove myself from fear and depression. The longest journey is now as I stumble in the dark.

The longest journey is the one I travel from my mind to find the truth. The longest journey is to find the comfort of my heart.

The longest journey is mired in fear and darkness as I look for the light. The longest journey is the suffering and experience that comes before I rediscover the light.

The longest journey was realizing that I had been walking with my eyes closed. Upon that realization I opened my eyes and learned that hope was always within my reach, for there was always light on my journey.

Finding light on my path

Returns

I walked into the school my father once attended never knowing he had been there before. I saw the Nehiyaw culture every where I looked but I felt something there that was unexpected. I felt dread and emotion that I did not understand and I thought it was because this was a residential school.

I thought that because I knew this had been hallways and dorms

where children were brought,

where they did not feel safe,

where bad things had happened,

that this was the reason for my fear.

I walked down the hall to where the library now stood, where once a chapel had been. I felt dread and disconnected from the reality of where I stood. I left and felt glad to be shedding the feeling of this place. Perhaps it was all in my head.

I returned home and told my father where I had been and where I had stood. He asked me why would I ever go there. I said I was there to learn about its history and its place now, as it tries to return culture to the people it stole from. I said “you should come there with me some time. There’s culture and language everywhere.” He looked at me and in a shaky voice half shouted “I will never go back to that fucking place.” I was shocked and shook to my core. I did not even think about my dad being in school there.

I remembered then the stories he told, brief though they were, of the nuns and how mean they were in school. I paused and I questioned, “I thought you didn’t go to school there.” He said quietly “It was only two weeks.” I did not say anything else but I thought his reaction was too strong for only two weeks. I didn’t ask again.

I went back there…to the school of two weeks…wondering how this place connected to me and my history. How was it connected to the pain my family experienced and as if the school could read my thoughts, I could not find a way into the building. None of the doors would open although there were clearly people inside. Someone came out and I caught the door and went in. The same feeling of dread surrounding me as I walked down the hall. I went to meet the person I had come to see, unfortunately, she had been called away for a family emergency. I left the building and immediately felt better.

Twice more I came to the building and was shut out. Twice more I left without answers. Then I went to a ceremony being held on the school grounds and I prayed that my dad would feel safe enough to tell me something; I shed tears for him.

A few days later my parents called. They said “can you please come here, we need you to look at some papers.” I went to their home and my dad handed me a brown envelope; he turned and walked away. I sat down at their kitchen table and asked my mum what it was. She said its about the time your dad spent at residential school. I said oh. I felt emotionally flat. I said I thought it was only 2 weeks. My mum said “no its longer and they only know he was there because other people identified him”. The school otherwise had no real records of him.” I felt anger burn in the pit of my stomach but I also felt sick. I asked “how old was he”….my mum said “just read the papers.” So I did.

It identified his timeline as at least two years and two months. I felt sick. I asked “What does this mean” I felt bewildered and confused. My dad came and sat down next to me. He asked “what should I do?” “They want me to go and make a statement.” I asked him “Do you want to?” He was unsure, unsure if he should open old wounds, unsure if he should talk about it, unsure if it was safe to do so. We smudged and prayed and I went home with even more questions.

I knew my uncles and aunties had gone to school there, they had said. My Auntie told me that they didn’t learn to read or write, that they had learned how to pray and to know that they weren’t good enough. She said my uncles learned how to work farm jobs. My Kokom had told me that they had been treated worse than dogs and that everything was rationed, they had to make do. Yet I couldn’t figure out why I didn’t think my dad had gone to school there. I guess because he never really said anything about it and because he had a substance use disorder, it wasn’t something that every crossed my mind. Now I had more unanswered questions. I also knew why my dad would walk away when anyone talked about going to school.

My dad called me a couple of days later and said “I’m going to do it but only if you and your brother will come with me and please ask your friend Wanda to come with us.” I said ok. nothing more, no questions just ok.

The day came for the independent hearing and I was nervous. We smudged and prayed. I gave my dad the things my children had given to me for Mosom; rocks for strength and a letter telling him that they knew he would be ok.

I listened to my dad’s story, the terrible things that had happened to him, the fear he felt, the pain he experienced and how it impacted his life. He he had suffered from depression, anger and suicidal thoughts for years. How he couldn’t be the father that he wanted to be but how he wanted to be a better Mosom. He showed them the gifts the kids had sent for him. WE were all crying. I understood my sense of dread and fear connected to that place.

I heard his story and understood my father on a different level. I saw him as a child, who had survived a horrible experience. How his dependence on alcohol for so long had kept him from thinking about those experiences and how his years of sobriety had helped him tell his truth.

I continued to go to that school to participate in the ceremonies every year that are held there. I always asked him if he would come. He always said no until about 5 years ago when he said maybe. Then he came with me. He was nervous and scared. As we drove closer he talked about the evil of the place and how much he didn’t want to be there. I asked him “do you want me to turn around?” He said no. We arrived.

He had returned. My nephew, the youngest grandchild at the time, was with us. He took his Mosom’s hand and we walked towards the building. My dad walked up to the building, took a breath and walked in. He had returned to his place of terror. He could only get through the door but that was more than I had expected. I felt proud of him. My mum looked at me as my dad said I need to leave the building and my nephew walked out with him. They walked around the grounds and we gave them time. Then we left. My dad seemed somehow lighter as we left.

The return was powerful, as was the ability to choose to leave. He had gained some freedom and I told him he didn’t ever have to go back there unless he chose to again. My parents, my nephew and I have gone back only once since then to attend a ceremony on the grounds but never to the building. I doubt if he will ever return to the building now that he has freely walked away from it.

Silence

Silence,

It is deafening in its stillness and quiet

Kista?

Awina?

Neya.

I am silent.

I am mute.

What do I say?

These words are lost to me.
These words I should know.
Tapwe.

I should be able to speak but I am silenced.

The nuns and the priests they took away the language.

I heard it in my youth.

My father’s first language. He learned not to speak and to remain silent.

It is spoken to others, who also spoke…those not totally mute, not totally silenced but still they did not speak it to me. I am silenced.

Sometimes words want to come, not lots of words only some. Then fear takes hold and they go away.

I do not know enough language to get by.
I know a few words but still fear gets in the way so I remain mute.

Silenced.

The silence is deafening in its stillness and quiet.

Thanks to that school I am silent. I am mute.