Family history

I’ve been told about my family’s history and told I should remember it, so I do. This is how we start.

In the beginning… we were here, we were here from time immemorial, from before colonization, before Canada and before the treaties. We come from people who were autonomous and independent. We had our own creation story, our own history, our own math and science. We hand our own medicines and medical practices. We educated ourselves. We took care of ourselves. We knew our history, our laws, and practiced our culture freely.  As time continued we experienced changes and made contact with new cultures and new ideas. We considered ourselves equal to these people. They did not consider us their equal and sought to exploit us.

We found the changes that were occurring were faster than we expected, and we were asked to enter into agreements to share the land.  So we entered into ceremony, prayed, and asked for guidance towards this end. In 1876, we were guided and therefore agreed to enter into a sacred treaty. This was done to benefit the people. We thought that because we we had entered into an agreement through Sacred Ceremony, that they would honour the sacredness and truth of the treaty. We thought they would follow through on their word to help us.

We did not agree to give up our independence, nor did we agree to give up who we were, our laws, our traditions, and our ways of being. We did not think they would continue to steal from us, not only taking all the land we agreed to share but also eventually our children. We did not think we would lose our autonomy, nor did we think we would be forced to give up our culture, language, and traditions to fit into another nations society. Their society.

So our family history is always told with the prefaced context of what happens next. This is the story of our family and its journey to now. It’s about how history has impacted us as best as I can tell. It’s about our relatives and who we come from. It’s the story of us.

What I took with me to chemotherapy today.

Today, I carried the love my children, my nosim, and husband have for me, it help me feel connected to all my reasons for healing.

Today, I carried my parents’ hope with me to remind me that I am always prayed for.

Today, I carried my brothers familys love for me, and it helped me to know it’s ok to feel sad because there are people there to pick me up.

Today, I carried my sisters with me when I went to chemo. I wore a ribbon skirt made by one. It brought the healing love that they freely give me. It reminded me to live life with ceremony, culture, and love.

Today, I carried with me my aunties and uncles prayers. These prayers and their love support all my family during difficult times.

Today, I carried with me my in-laws love and support for my family. I know they hold us close.

Today, I carried with me the love of my nieces and nephews. Their laughter and joy reminded me of life.

Today, I carried with me my friends comfort. This reminds me that I always have people to help me.

Today I brought ahkamēyimok with me. It is the feeling of perseverance, to not give up, and to keep going in spite of difficult times. I am grateful and blessed.

Kinanâskomitin

Meditation

I close my eyes and I feel the softness of the earth under my feet. My moccasins touching the soul of where my ancestors walked before me.

I breath in and listen to the quiet of the forest all around me. It’s quiet but noisy at the same time. I gear the birds and animals around me. I feel the peace and connection that my ancestors felt before me.

I open my eye and I see the beauty of this land. I see the clear water, I see the treas grown tall. I see the birds flying and the moose walking. I see the plants for healingand medicines and I know where I belong.

I feel the connection, so strong. I pray to my ancestors to ask Creator to help me and guide me. I pray that others see the beauty and blessing of our ancestors who walked this land. I pray so others may see their reflection and the beauty of the natural world.

Blessed

In the morning the sun shines and reminds me I’ve been blessed to have another day. I greet you with a morning kiss and remember, I am blessed to spend another day with you. I breath in joy, happiness and hope and go about my day.

In the evening I express gratitude. I sit and reflect on how much I love you. I’m grateful to still be here. I’m grateful that I gain a new life everyday overcoming fear and remembering that you are with me too. I am grateful for every day experiences and blessings.

Hope

Hope is powerful when you have it. So many experiences can diminish the hope that you have and it can be difficult to find it again. Being diagnosed with cancer can devastate your hope. It can be like having a candle and trying to keep it lit in a storm. You never know whats happening and you are never actually prepared for whats going to happen.

Recently I have had many people close to me diagnosed with cancer. It sometimes feels like it’s all around me and as if it’s so common. It feels like we all need hope in action. We can only do what we can to build hope in ourselves and in others.

There are so many thing to learn when you get diagnosed with cancer. It’s hard to figure it all out. There’s lots of information out there. It’s also difficult to know how accurate all that information is. Every time I hear about someone I know being diagnosed with cancer I feel my shock over again. Then I think about all the experiences they will be going through and I pray that they have a good outcome.

I walked in Ovarian Cancer Canada’s walk of hope. They say “Hope for change, hope for awareness and hope a cure.” This year will be my third year walking in it. I prefer to do a virtual, local walk instead of the large walk in Edmonton. I can walk with my friends and family. It makes me feel hopeful. The first year I walked I was still receiving chemotherapy. I could not walk very far. I set a goal for my second year, to walk at least 5 kms. I was able to do that. This year, I hope to walk at least the 5 kms again and perhaps further.

Walk of Hope 2021

I’m walking because I was diagnosed with stage 3B ovarian cancer on April 1, 2020. I was told I’m in remission on September 28th, 2020. It’s been an experience and a difficult journey. I thought that somehow being in remission would mean that I was better. That all the fears I struggled with would soon be gone. That’s not the reality. I have lingering affects from the chemo. I struggled to remove myself from the idea of having cancer.

I guess I’m kind of still living with cancer. I’m still receiving treatment because I have a BRAC1 gene mutation. This means that I’m at higher risk for recurrence or getting breast cancer. I’m currently taking a parp inhibitor, which to my understanding is a form of targeted therapy to prevent recurrence. Research shows its very effective.

Recently I started seeing information about living with and living beyond cancer. I guess living with cancer would be the diagnosis and the treatments. Living beyond cancer would be be after all your treatments are finished and seeing yourself as thriver not just a survivor. I plan to live beyond cancer.

Speaking my truth

I have had more people than I expected ask me what it was like to share my story at the TRC. I have to say it was one of the most difficult things I have ever done. It was scarier than anything I have experienced and at the same time it was very liberating.

I had considered, how much do you share when you tell the story of your experience. It is not just my experience but also the experience of my siblings, my parents, my aunts and uncles and cousins. It directly impacts them. It exposes things that you learn not to talk about. It is a fearful thing to break the rules of silence because it is not just our family rules but it is also societies rules of silence.

It is about shining a light on truth that people would rather not see and then giving them a reason to say they knew I was screwed up and now here is the proof because I just told everyone what happened in my family.

FEAR, it is so powerful. It can rob you of independence and steal your dream. It is the great silencer. Fear is one of the most difficult things to overcome. It is surrounded by what ifs and anxiety. It is why I had nightmares for years. The only way to overcome fear is to open yourself up to love and truth. Even miserable rotten truths are better than living in constant fear.

So my truth was spoken in a deeply painful and personal way. I cried a lot at the TRC. I cried because I felt alone, even though I wasn’t. I cried because my family wasn’t there. I cried and grieved my losses. I cried because of the shame I grew up with and I cried because in all those things I experienced were teachings. Some of these were not healthy and others well honestly gave me strength to endure. So as scary as it was, as painful and as difficult as that experience was, I am glad that I did it. I wish that more people would have been able to do it but to those who did, I am so grateful, they were able to share their stories. In telling the story we all gained a little more freedom. And if you really need to know more well, I’m open to telling you about it as long as you are open to listening without judgement.